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WE CANDO THIS

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Getting the prescription. Working through insurance. Receiving the medication on time. It’s a lot. The good news is we’re here to help. Our Case Managers understand the ins and outs of getting your treatment. They’re also here to help you make sense of it all. Together, we’ll make it happen.

Learn how we can help with a specific condition:

Duchenne Muscular Dystrophy (DMD)
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Aromatic L-amino Acid Decarboxylase (AADC) Deficiency
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Phenylketonuria (PKU)
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Friedreich’s Ataxia (FA)
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Connect with your personal Case Manager

When you join PTC Cares, you’ll be connected with a dedicated PTC Cares Case Manager who will be by your side to help you navigate treatment. Your Case Manager can help you address potential challenges and serve as a resource throughout your journey.

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Inside PTC Cares

PLAY VIDEO: The Extra Mile With Carla
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The Extra Mile With Carla

Carla is one of the first Case Managers. Her colleagues often refer to her as “Momma Bear,” because she brings compassion to helping families every day. Her goal is to be the first line of defense for families, helping them navigate through any issues that come their way.

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Leading the Charge With Rachel

Rachel brings a friendly attitude to every call she answers. She knows that the families she works with have a lot going on in their lives. She prides herself on taking tasks off their plate, so they can focus on what’s really important.

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Making the Next Move With Rick

Rick’s diverse skill set is a dependable resource for all kinds of families. He helps them get what they need every step of the way and can even bridge the gap for folks who only speak Spanish. Rick has even been known to go out of his way to meet families at conferences around the country.

Get help navigating insurance coverage

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Whether you’re just starting out or have changes to your existing insurance, we can work with your insurance company directly to help you navigate the process.

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Frequently asked questions

Get answers to commonly asked questions about insurance, affordability, or getting medication.

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About us

Find out more about who we are and how we help families living with rare diseases.

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