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ABOUT US

PTC Cares is a support program staffed by dedicated Case Managers who help patients living with rare diseases and their caregivers by coordinating treatment and guiding them through it. Think of PTC Cares as a dependable partner who will always be there.

Collage of PTC Cares Case Managers Collage of PTC Cares Case Managers

How we help

We take care of treatment coordination, so you can take care of your family. When you enroll in PTC Cares, a dedicated Case Manager will be there to support your family throughout your journey. We’ll provide the expertise you need to help make the process of getting treatment easier on you.

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Verify insurance coverage

Unsure about your insurance coverage? We’ll work to help manage your insurance requirements and navigate the insurance process throughout treatment.

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Review out-of-pocket costs

Worried about affordability? We can help you understand your options. If you need help covering treatment costs, we can help you explore your options and let you know if you’re eligible for financial assistance programs.

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Coordinate with specialty pharmacies

Looking for seamless medication delivery? We’ll help you manage delivery of your medication and refills to help ensure your medicine arrives when and where you need it.

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Connect you with additional information and support

Need help that goes beyond treatment? Whether you need practical or emotional support, we can connect you to a network of support that includes other families and peers or patient advocacy groups. We’re just a phone call away.

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Work with your healthcare provider

Not sure what information is needed for your prescription? We'll work with your healthcare provider to help collect any information we may need to support your prescription.

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Reach out to see how you’re doing

Need additional support? We'll reach out to see how you’re doing and answer any questions you may have to further support your treatment journey.

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We are always ready to help

1-844-4PTC-CARES (1-844-478-2227)
M – F, 8 AM – 6 PM ET

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Who we are

Meet our PTC Cares Case Managers. When you enroll in PTC Cares, a dedicated Case Manager will call to welcome you to the program. They’ll be with you from the very beginning, and they’ll stay with you for the long haul.

Peter Apito

Peter Apito

Washington, DC

“I have the privilege of empowering patients to access the medications they need at a time that can be overwhelming and worrisome. By breaking down barriers and simplifying the insurance process, I’m ensuring my patients have the opportunity to live healthier, happier lives.”

Rosanna Casillo

Rosanna Casillo

Chicago/Wisconsin

“I thoroughly enjoy caring for families and love that I can take care of all their insurance needs while they spend every moment making memories together as a family. Outside of work, I enjoy staying active and baking with my kids, creating memories together.”

Rachel Coleman

Rachel Coleman

Mountain States/Northern CA

“I like knowing that at the end of the day, I’ve made a positive impact in someone’s life. Healthcare is complicated, but I feel good knowing our patients and their families can count on me for updates and assistance. Outside of work, I enjoy reading sci-fi and fantasy books, tending to my vegetable garden, and hiking in the woods.”

Courtney Cruz

Courtney Cruz

Atlanta/Memphis

“The best part of working with my families is being able to witness the resilience and strength they have. I love that this job allows me to be a part of their journey by developing a bond with them and fostering a strong sense of community. A fun fact about me is that I celebrate my creative side and sew imaginative, whimsical dolls that bring a touch of magic to my everyday life.”

Moheez Dean

Moheez Dean

Boston

“My job gives me the opportunity to build meaningful relationships with my patients, families, and providers. It is incredibly rewarding overcoming challenges and barriers to provide life-changing medications to our patients. In my free time, I enjoy spending time with my family and exploring nature on my ATV.”

Shaleema Graham

Shaleema Graham

Upper Midwest/Dallas

“Helping my patients truly brightens my day. Bringing joy to families facing so much is incredibly rewarding, and knowing that I can help them create more memories together is deeply satisfying. Outside of work, I love planning and doing DIY projects.”

Jackie Guarraci

Jackie Guarraci

Carolina/North Central

“I enjoy my job because it is not easy, but it is possible, and when it comes to the families I serve, the possibilities are endless. Something I greatly cherish outside of work is being around my two young daughters; they give me a sense of belonging. I love the exciting adventures and fun experiences we have together.”

Amanda Higgins

Amanda Higgins

Cincinnati

“Empowering families, advocating for patients, and guiding them through challenges—it’s about making a difference when it matters most. In my free time, I love learning new things. Picking up a new hobby or reading interesting facts helps me stay creative and energized so I can better assist my patients and their families.”

Kenneth Phung

Kenneth Phung

Ohio Valley

“My job allows me to resolve challenging patient access barriers and provide my patients with life-changing medicine that gives them more cherishing moments with their families. It makes me feel rewarded and grateful to have the ability to make an impact. Fun fact about me: I have a twin brother who is one minute older and two inches taller than me, so you might be able to tell the difference if you get to know us.”

Norma Rios

Norma Rios

Pittsburgh/New York/Puerto Rico

“I love my job because, at the end of the day, I feel a profound sense of satisfaction knowing I've helped a family in need. Having a son with special needs has humbled me and helped me grow into a strong individual who wants to help others. I take great joy in advocating for families to ensure their loved ones receive the necessary treatment and resources they need. A fun fact about me: I have a 12x24 “she” shed. It's not just a place to sip wine and relax, but rather a safe haven for my beloved holiday decorations. I have a passion for decorating, especially for Halloween and Christmas.”

Lissette Rodriguez

Lissette Rodriguez

San Diego/Phoenix

“I enjoy being a patient Case Manager because it allows me to support families during some of their most difficult times, guiding them through their treatment journey with care and compassion. The most fulfilling aspect of my job is developing trustworthy relationships with these families—being someone they can rely on, ask questions, and turn to for advice makes every day important. Outside of work, I’m always up for an adventure—I love traveling, trying new foods, and exploring new places, but my favorite moments are the ones spent with my boys, making memories and soaking in all the little joys of life.”

Rick Rodriguez

Rick Rodriguez

Southern CA

“I love my job because it allows me to make a positive impact on people’s lives every day. Working with patients brings me immense joy and fulfillment as I help them on their treatment journey. Outside of work, I love music, collecting old vinyl records, and spending time with my family.”

Sarah Sanchez

Sarah Sanchez

Houston

“I love my job because I get to assist people, which I truly enjoy. Helping families feels like supporting an extension of my own family. Fun fact about me: I went skydiving when I turned 30.”

Bertrand Smith

Bertrand Smith

Great Plains/Mid/South FLA

“The strength and courage in how each family faces their individual challenges is inspiring. Your strength gives us strength. A fun fact about me is my first job was working for the Buffalo News in the position of a (now seemingly extinct) paperboy.”

Alicia Mercedes

Alicia Mercedes

Pacific NW, Philadelphia

“I absolutely love being a Case Manager because supporting my patients through their journeys fills my heart with purpose and joy. Outside of work, I enjoy staying active, whether working out or spending time outdoors with my kids, creating memories that mean the world to me.”

Insurance navigation

We help in turning challenges into insurance successes every day. Trying to figure out what your insurance covers can be a frustrating, time-consuming process. Luckily, you have an expert in your corner to support you. We’ll be there to help navigate the insurance process, from the very first prescription through every open enrollment period—and any changes in between. Your Case Manager can help with:

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Confirming your prescription

Once we receive your Prescription Start Form from your healthcare provider, your Case Manager will give you a call to confirm your information.

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Benefits investigation

We’ll work with your healthcare provider and your insurance company to confirm your coverage and any out-of-pocket costs.

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Explanation of benefits

Your Case Manager will walk you through your insurance benefits and any additional financial assistance programs that may be available.

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Continuing support

If your insurance coverage changes or other challenges arise, your Case Manager will always be there to help you maintain access to treatment.

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Frequently asked questions

Get answers to commonly asked questions about insurance, affordability, or getting medication.

View FAQs
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Caregiver stories

Hear from other families who understand your journey and learn about their challenges and successes.

Watch now
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