RICK: The great thing about PTC Cares is we do have a lot of services. Obviously our services, PTC Cares services, where we help patients get through point A to point B as far as getting on therapy and also after therapy still supporting them.

Getting on Therapy and Beyond
CARLA: That’s key, yeah.
RICK: So that’s first and foremost. But in situations where there’s a last minute insurance change or an unexpected insurance change, we have those Bridge Programs. We have those programs in place where once you’re on therapy, you’re not going to you’re not going to be off of it.
CARLA: You’re not going to get off of it.

Patient Assistance
RICK: We also have our peer-to-peer program, which I think is really nice, where we can connect families, which I thought was awesome when I first learned about it.

Peer Navigator Program
RICK: And I’ve connected a few families that have actually—one of my families is a peer-to-peer navigator.
CARLA: Wow, really?
RICK: So yeah, so she’s our go-to for any families that have questions and stuff like that.
CARLA: Nice. That’s the family that you got to meet?
RICK: I met them, yeah.
RACHEL: Oh, awesome.
RICK: I met them in December along with another family. I was blown away.
CARLA: In my particular territory, I do have a lot of older—they’re not boys, they’re men, okay? And they never cease to amaze me. Like, I remember being at one of our meetings and one of my boys came on stage and I had to shake his hand after that meeting. And I introduced myself and I was just like, “Hey, it’s definitely a pleasure to meet you” and meet him in person, you know? Like we talk on the phone, but it’s just like, “hey, how are you? Just to shake your hand” and like, you know. I do have a lot of older patients, and compared to the families that are newly diagnosed, it’s like a world of difference on how you support each patient.

HELPING FAMILIES STAY ON THE RIGHT TRACK
CARLA: How do you help patients stay on track?

• Schedule Visits
• Ask Questions
• Take Treatment as Recommended

RICK: I help people stay on track by reminding them to do things like schedule visits, ask their doctor’s questions, and take their treatment as recommended. If I notice a lapse in shipment, and then a new order comes in, I reach out to make sure that the patient is taking treatment correctly.

FINANCIAL ASSISTANCE PROGRAM
RACHEL: I work towards getting the patient on the Bridge Program when there’s a lapse in treatment.

SUPPORTING ACROSS CULTURES
RACHEL: So, one thing that I know at times I’ve needed some extra help with is my Spanish-speaking families. There’s a lot of information out there, but it’s not always accessible if you can’t read English. And so it’s, I’m really, really grateful that we have Spanish-speaking Case Managers. I know you are, Rick, and it’s really helpful to have those bilingual Case Managers.

SPANISH-SPEAKING CASE MANAGERS
RICK: This is a huge population and these people need support. Having materials in Spanish is huge.
CARLA: Yes.
RICK: The comic books that are in Spanish.
CARLA: That everything is translated.

• Translated Consent Form
• Translated Prescription Form

RICK: It’s our website, our consent forms, everything, the prescription form, like all that stuff is in Spanish. So they feel comfortable. They know what they’re signing. They know what they’re, you know, they can read the prescribing information in Spanish. So it’s amazing.

LANGUAGE ISN’T A BARRIER
RACHEL: That language isn’t a barrier to getting their medication.
RICK: A hundred percent. A hundred percent.